Sunday, August 25, 2019

Big Day for Natalie 8/26/19


Photo by our dear friend Amaris (Amarisphoto.com)

Tomorrow is the “big day” for Natalie. I’ll be posting updates as she hits specific milestones or has clear needs coming up in recovery. This way everyone can know precisely what is going on and will know how to focus prayer, thoughts, and encouragement. So I’ll start tonight with a lengthier post about what she has coming up tomorrow and we’ll go from there!
Her procedure is scheduled for 2:00PM. We’ll arrive at UNC around 12:30 and wait as her operating team preps for all of the intricacies of the surgery. There is a chance they’ll move the time but we’ll update if needed. The procedure will happen in 3 stages. The stages are:

1) Removing the existing mobile part of the growth rod- This is the biggest part of the rod that runs the length of her back. It’s the part on her back that most people notice protruding from the top. That large “hump” at the top is actually a metal rod and not her back at all. There will be an entry point at the top of her back for its removal.

Pray that Dr. Stone and his team will work swiftly but precisely to get all of this hardware out without introducing any bacteria, virus, etc. This area in the past has been prone to infection because of the positioning of the incisions. Pray that infections, etc. can be avoided.

2) Removing the stationary hardware- This is the tricky part. The stationary hardware is what is actually connected to her spine and surrounding areas. As you can imagine there are plenty of areas in which the surgeon will need to have unimaginable steadiness to make sure he doesn’t damage anything while removing these parts.

Pray that the team can remove all of the hardware (screws, wire, etc.) safely without damaging any nerves or discs or bones. There will be an access point at the top and bottom of her back to remove these components.

3) Positioning and connecting her Halo- While still under the general anesthesia the team will affix 8 screws around her head into her skull. They are tight and will obviously be quite an adjustment for Natalie. She knows that it is screwed in but does not fully know what all this entails.

Pray that Natalie will understand that the pain associated with the halo will subside as she recovers and pray that she will understand and accept that she has to wear this device for the duration of her time at the hospital and potentially after she is released.

Natalie is a funny but ornery patient. During Pre-Op she is given a medication that makes her very “happy”. Typically she spends this time laughing at us, pointing at things that aren’t actually there, and talking to anyone that happens to walk by her room. She becomes “Social Natalie” and has a great time. However, in Post-Op, she ALWAYS wakes up angry and tries to get out of bed. Every. Single. Time. Although it’s pretty comical to see her get riled up it’s very important that she stays as calm as possible after the surgery. So if you will, please pray that her stubbornness will hold off until she at least gets to her room. Her strong will serves her well most of the time but tomorrow she’ll need to remain peaceful and still.

I think that about sums up tomorrow’s activities. It will take anywhere from 6 to 8 hours to get everything done in surgery but we will give an update as soon as possible after she wakes up. So be on the lookout! 

We've gone through surgeries with Natalie but nothing of this magnitude. This is new for us so we appreciate you all coming along with us. We are so thankful for everyone on this journey. Joanna and I truly can’t articulate how much it means. We love you all.  

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